Tag Archives: colonoscopy

Pokemon Go… Gently

Fellow Spoonie Pokemon Trainers! I’ve figured out a few tricks in order to get a good experience of playing Pokemon Go and not completely spending all of your spoons for several weeks.

  • If you close the app and just go to the home screen (don’t close it completely or you’ll have to go through the lengthy log in process every time) you can open it up again and your GPS/character will be wandering around for a bit. This counts as distance. I’ve been doing this for hatching eggs in Houston, where it’s almost impossible for even abled people to go out during the day in the summer.
  • Use Incense! You can attract Pokemon to come to you rather than spending spoons to go searching. You’ll usually get more common Pokemon (Bug and Normal types), but it adds up! The more stardust you have, the better.
  • Lures! You don’t have to walk too much when you’re at a Pokestop with lures. They come to you. Make sure you’re well stocked on Pokeballs.
  • Get a friend to drive you around. You’re in charge of catching Pokemon for them, though. Do not Pokemon and drive. It’s actually  hilarious trying to catch two at once. Maybe do this around a neighborhood or empty parking lots where erratic driving is a bit more forgivable.
  • Stock up on common Pokemon in your area (Pidgey, Rattata, Caterpie, Weedle, etc.) and their respective candies. Then, use your Lucky Egg and evolve them during that 30 minute period. You gain about 600 EXP when you evolve something, so with the Lucky Egg, you’ll get 1200 EXP for one evolution! You don’t have to use stardust to evolve anything, either.
  • Got a wagon? Use it. Have friends or family members pull you around. It’ll remind you of the good old days. They seem a bit better for rougher terrain than wheelchairs.
  • Here’s something I’ve discovered myself! If you’re in the same spot for a while, some random Pokemon just show up! It’s usually the more common ones in your area, but the more stardust you can get, the better.
  • How to get whatever Eeveelution you want: (Ok, don’t kill me if this doesn’t work, but I myself have seen two successful desired evolutions with this method. I’ll update it once I’m able to do this myself since I’m low on Eevee candy.) You nickname the Eevees before evolving them. It’s Rainer to get Vaporeon, Sparky to get Jolteon, and Pyro to get Flareon. This is based off of the episode from season 1 of Pokemon where the kid brother gets pressured to evolve his Eevee using an evolution stone. Please comment below if this method actually works for you! I don’t want to be spreading misinformation.
    Edit: I’m absolutely positive this is real. I’ve seen it about three more times and I’ve done it myself to get a Flareon and a Jolteon after getting two Vaporeon by chance. It works.
  • The curve ball. You can do this by spinning the Pokeball around in circles before you throw it. You can tell it’s charged up if you see sparks flying from it. It’s a bit harder to catch stuff, but you get an extra 10 EXP for doing it successfully.
  • Here’s one I’ve just heard recently. You can download the Ingress app and search for Pokestops in your area since the Pokemon Go app doesn’t map out outside your area. Landmarks are also marked in the Ingress app so you can plan out routes and breaks. Pokestops refresh every 5 minutes or so, so you can rest in a shady area near one and farm items and 50 EXP every time.
  • This is something I have been trying to tell myself, but know when to stop. I got really close to hurting myself from walking nearly 5 km in one go to hatch an egg. My knees and ankles were radiating with pain. I was surprised that people near me couldn’t feel it. Don’t do that. Ash wouldn’t want that. He knew when it was time to stop and take a rest for the day. There’s no need to feel like you need to compete with others that are playing. It’s just a fun game (that should’ve probably had a bit more time spent on it with all the server problems there have been, but I digress).

And as a final question to Spoonie Trainers: I know we all can’t go on a Pokemon journey, but what kind of life do you think you would have if Pokemon were real? I’ve always pictured myself keeping them as pets or guard animals – most of them being abandoned strays before I find them. This is the case with almost all of my pets, so I figured that wouldn’t change in this fantasy world.

Now please excuse me, two Eevee just showed up and I’m freaking out.

Edit: The game crashed as soon as I caught one of them. Of course.

 

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The Mega Update

I definitely have some apologizing to do with my absence from this blog. I didn’t expect things to go wrong as long as they did. My health took a sharp nose dive into the abyss that is reality when I had to take my leave. I had nothing but depressing news that I was overwhelmed with to process.

My Tumblr friends can attest to that after dealing with my complaining for so long. I’m surprised I still have followers left.

After my day in the ER with the high fever, I was given antibiotics to get over the UTI I had. The fever and nausea had me miserable. However, it turned out I was allergic to those (I’m allergic to literally nothing, surprisingly) antibiotics and they caused a bad flare up of my ulcerative colitis. I was off of Prednisone at the time for a little over a week, so I had nothing really to help me. I started bleeding again, I was nauseous, had zero appetite, and I was throwing up anything I tried eating.

I knew something was wrong and nothing I could do could help. My mom just tried to get me to eat soup.

I called my GI doctor on the morning of August 13th to ask what I should do. He wasn’t in that morning, so they said that he could call me back once he got into the office. I just went back to sleep while waiting and woke up with a fever again. I needed help right away, but everyone else in my family was too busy to take me to the ER. My mom and younger brother were busy taking my cats to the vet, my dad was at work, and my older brothers were busy with their jobs. My grandma could’ve taken me, but she never leaves her house anymore.

I sucked it up eventually and drove myself to the ER. I packed up everything because I knew it was going to be another long stay. I wish I had gone a bit earlier because of how long it ended up taking to get help. The waiting room in an ER in a full hospital is the actual worst. 

I felt bad for the nurses because when they drew my blood when I was getting processed. I ended up getting almost passing out, but throwing up on an empty stomach happened instead. It was a great feeling. They gave me Zofran and IV fluids right away, so I was already hooked up just sitting in the waiting room. I was mostly annoyed because they wouldn’t even let me drink water to get the lovely stomach bile taste out of my mouth.

It was 2 in the morning by the time I was given a hospital room, where they immediately had me started on a Golitely treatment for a colonoscopy the next morning. They wanted me to finish it by 4 am, but there was no way I was going to be able to do that. That stuff does not mess around. I did finish it by my procedure, so I guess it was mission accomplished. 

I’ll never get over how bad Golitely tastes. It’s ruined any lemon lime drink that I could ever drink for the rest of my life. 

Good bye forever, Sprite and 7Up. I won’t miss you much at all.

When I woke up from my colonoscopy, I was alone. Everyone was busy with their own lives, so I was left to deal with the brunt of the bad news. My condition has gotten even worse from how I was in early June. Even with the Remicade treatments I’ve been going through.

It had worked for a short time, but I had had an allergic reaction to it and it didn’t work as long as it was supposed to. I blame how mixed up everything got with the scheduling of it.

My GI told me that if the steroid treatments that he’s going to put me on don’t work, then I’ll have to talk to a surgeon.

I almost broke down then and there, but he quickly left and I just stared blankly (and blindly, since I didn’t have my glasses on) at the wall until they moved me back to my hospital room. My heart sank into the floor. Hearing such an ultimatum just numbed me. Once I was settled back in, I went straight to sleep. I just didn’t want to think anymore.

When I woke up, I was told that my insurance doesn’t cover the hospital I walked in to. I was super confused since I had spent my June hospital stay at that exact same hospital. Luckily they were able to move me to a hospital I had gone to for my first kidney stone through an ambulance.

It was super weird. Ambulances are much more cramped that I would’ve expected. Also the stretcher is pulled up super high compared to a gurney. I was raised up higher than I am tall, so it was funny being so high up while sitting. The paramedics I was with were super cool, though. They shit talked other people they’ve had to deal with once they realized how chill I was. I guess that’s the perks of being a young sick person.

I still don’t consider myself much of an adult.

Maybe an adult cat. I can take care of myself mostly, but I still need some help.

I got settled into my new hospital room easily enough. I started channel flipping on the TV and they had more stations available, so I feel like my conditions have improved. Also, the Spongebob movie was on Nickelodeon, so I was set for the night. 

That night was the roughest out of all the days I stayed. I was completely alone with my thoughts. It was just so much for me to hear that I might have to have my colon removed. I guess it’s not as dramatic as having to get a leg amputated or something, but I was terrified, even though I know it would instantly cure me to have it removed.

The next morning, a surgeon came in to talk to me. He said first thing that surgery is something that he wanted to avoid at all costs. It’s going to be a very last resort. He also took me off food and increased my IV fluids to make up for it. It was a little over three days that I had nothing but water and ice chips to chomp on when I was bored.

Meal times used to be my way of passing the time in the hospital. It was a routine. I no longer had that. It was a long three days.

Hunger was a surprising non issue, though. I guess having been nauseous for over a week already, my stomach lost its appeal for food. My taste buds were the main ones who suffered in this. If I were to ever doze off, I’d daydream about eating a cheeseburger. I don’t know why cheeseburger, honestly. But I’d catch myself softly biting into nothing/the imaginary cheeseburger.

Needless to say, once I got back on a regular diet, I ordered a cheeseburger.

My stay this time around ended up being the longest its ever been. 10 days and I barely got out in time for school. I feel like I got out when I did because I had mentioned to my GI doctor that I wanted to be ready for school. I don’t want to fall behind because my immune system can’t cut it. My future shouldn’t have to suffer for that. I want some sort of normalcy to work toward once a cure is found that doesn’t involve me having to get my large intestine cut out.

So… yeah, I’m so sorry about not updating anything for so long. That’s just the back story of the whirlwind I’m caught up in now. It’ll be a bit harder to do this daily since school’s started again, but I’m going to work my hardest to keep this up. I owe it to myself.

Perfectly Normal

When I was in the hospital, I expected my second colonoscopy to go a lot like my first. It mostly did, but there were some differences. The first difference that I was more than happy to experience was that prep wasn’t nearly as viscous. I couldn’t even finish the laxatives last time because I was so exhausted and disgusted, but apparently I had had enough to go through the procedure. I had about a liter left. This second time around I was able to finish with several hours to spare. I just asked for nausea medicine ahead of time and just chugged it at random points in time.

I honestly wouldn’t recommend that method to anyone.

I was annoyed that I had to leave my glasses behind the second time around since my mom wasn’t there, but I just dealt with it. No one wanted to be held responsible for losing them. I didn’t even bring my contacts with me and the probably would’ve told me to take them out anyways. 

As I was rolled on the gurney to the waiting room (it was more of an office), one of the nurses introduced himself and started asking me questions. What’s your full name, birth date, what procedure you’re getting done, how was your day – that sort of thing.

I always get half nervous that someone’s going to go “Wait, what?” when I answer the “What are you here for?” question.

“What are you here for?”

“A colonoscopy.”

“Wait, I thought this was a kidney removal.”

But as he was typing all of this up on a computer, he turned toward the anesthesiologist and said “Well, it looks like if it weren’t for her colitis, we’d have a perfectly normal young lady right here.”

What does that even mean anymore? “Perfectly normal” has to have some sort of standard that I don’t know of, because I don’t think I’d ever fit that.

I could only really manage an awkward laugh as suddenly the room exploded with nurses trying to stick things onto me.

“No need to panic, these are just for the heart monitor,” someone with a pair of VERY cold hands said. I just ended up giving up and holding my arms out like Magneto ascending to the sky so everyone could do their work.

I feel like nurses are so lucky to have me. When I had braces, my orthodontist used to let his interns work on me because I was so chill. Of course he’d check on their work after, but I’m pretty sure I’ve been poked and prodded more than the average patient.

Then I was eventually wheeled into the procedure room, where they had techno/house music playing. That definitely threw me off.

Also, the nurses were super nice and even complimented my skin. Usually I just get comments of concern asking if I’m ok since I’m so pale.

The last thing I remember before getting knocked out was one of those oxygen nose things being put on me and the air conditioning in the room getting really loud. It sounded like I was in a wind tunnel.

I’m still trying to figure out, though, what that nurse meant by there being a possibility of me being perfectly normal. Didn’t the Dursleys pride themselves in being perfectly normal, thank you very much? Then one day a baby wizard got dropped onto their doorstep and everything changed.

Is my ulcerative colitis my baby wizard?

Will it someday grow up and defeat the Dark Lord Voldemort and then join the wizard cops?

I’m definitely the best at analogies.